WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. WeHaveAFace has created the most robust and comprehensive Mobile Quiz App for our international Huntington's and Juvenile Huntington's disease community! WeHaveAFace wishes to continue to offer information, education, and resources to our global population! Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilized various state-of-the-art technologies: international videos, films, radio show, mobile applications, electronic publications, accredited training, and social media networking.
The WeHaveAFace Quiz Application includes content from the following sources:
Dr. Herwig Lange (George Huntington Institute)
UC Davis for Regenerative Cures
The University of Iowa
The University of British Columbia
The HSG (Huntington Study Group)
The Mayo Clinic
NIH (National Institutes of Health)
HOPES (Huntington's Outreach Project For Education, At Stanford
HDDW - Huntington's Disease Drug Works
WeHaveAFace will continue to do what we do best - offering education and information via technological tools to our peers in the Huntington's and Juvenile Huntington's community.
"WeHaveAFace Quiz" application is owned and operated by WeHaveAFace.org.
In 2017, WeHaveAFace launched the international "WeHaveAFace Global Times" newspaper. Since the release of our "WeHaveAFace" magazine in early 2017, we have received such incredible feedback from our international Huntington's and Juvenile Huntington's families, and from our amazing medical professionals. The publication provided many vital resources for our community and the general public.
This online publication:
Studies and trials
"Dear Doctor" - Patients and caregivers provide questions for our amazing medical professionals
News and insight from our partnering Huntington's organizations
Articles from HD/JHD doctors and researchers
Articles from the HD/JHD community
Video and audio clips pertaining to HD/JHD
Stay tuned for additional information about this exciting publication!
"WeHaveAFaceGlobalTimes" is owned and operated by WeHaveAFace.org
The Purple Road
Since the release of our first documentary -
"The Huntington's Disease Project: Removing the Mask," many have asked us, "What is next?"
With the global success of our first documentary, we are pleased to bring another film to the international stage. We are confident that through truth, love, sensitivity, and professionalism, "The Purple Road" will bring Juvenile Huntington's disease to the forefront - globally. WeHaveAFace understands how to produce such films, and through years of experience as a social networking and media-driven organization, we look forward to broadening educational awareness of this disease.
The aim of our film was to create an international Juvenile Huntington's disease documentary. We are pleased to introduce: "The Purple Road"
WeHaveAFace began filming "The Purple Road" in Brockville, Ontario, Canada. We then traveled to the United Kingdom and Germany to continue the production. The success of this documentary was simply amazing. Please follow the link below for more information.
WeHaveAFace understands the need to discuss sensitive subject matter and topics pertaining to Huntington's and Juvenile Huntington's disease. It is our responsibility to "push the envelope" by hosting shows with sensitive topics such as suicide, sexuality/sexual promiscuity, alcoholism, aggression, behaviors, and so much more. We must continue to openly talk about all aspects of this disease.
The decision to broaden our organization internationally has provided us with a brilliant multicultural insight into our HD/JHD patients, caregivers, and medical professionals in other regions.
WeHaveAVoice Radio is blessed to have the guidance and medical insights of Dr. Herwig Lange (George Huntington Institute, Münster Germany). Dr. Lange has joined us as our Medical Advisor and has made it a priority to help our international Huntington's community.
WeHaveAVoice Radio is now broadcast via iHeartRadio, with the potential reach of over 70 million registered users! It is time to broaden awareness of this disease - globally!
"WeHaveAVoice Radio" is owned and operated by WeHaveAFace.org
In June 2017, WeHaveAFace.org began to construct a unique platform to provide education for our international Huntington's and Juvenile Huntington's patients and caregivers, as well as professionals who are unaware of what this disease is. Through in-person conversations, support group meetings, and online surveys, the feedback from our HD/JHD community brought us to create our HD3 training program. All of us at WeHaveAFace.org: USA, Canada, UK, and Germany, have decades of experience working for group homes, nursing homes, hospice, day-training facilities, and hospitals. We have first-hand experience working for individuals with diseases and disabilities.
WeHaveAFace.org has produced a robust, interactive, multimedia-based training. Through in-person conversations, support group meetings, and online surveys, the feedback from our HD/JHD community brought us to create our HD3 training program.
What is HD3?
A 3 Tiered Approach!
HD1- The Huntington's patient: newly diagnosed, and early-to-mid-stage.
HD3- Nurses, CNA's, social workers, group home and nursing home staff (unfamiliar with Huntington's and Juvenile Huntington's disease)
*The HD3 Training was piloted in the UK - Spring 2017!*
HD1 & HD2 - Certificate of Completion
HD3 - Accredited
Do you live too far away from a Huntington's Support Group? Is it difficult for you to leave your home? Do you already have a support group, but would like to meet people from other regions around the world? If so, then the WeHaveAFace Virtual Support Network is right for you!
WeHaveAFace.org builds its programs based on the feedback from our international Huntington's and Juvenile Huntington's disease community. We understand that many of our peers are unable to attend physical support groups and the challenges that exist with this disease.
WeHaveAFace.org has decided to utilize Skype, Facebook video, and FaceTime during our physical support group meetings. Everyone needs support, and by harnessing these technologies, our peers can become part of a larger family without ever leaving their homes. Please provide us with the information below, and we will contact you directly!
Since the 2017 update of our WeHaveAFace International Mobile App., we have over 100,000 active users - globally! WeHaveAFace is the premier multimedia advocacy organization for Huntington's and Juvenile Huntington's Disease.
Education - Information - Resources!
WeHaveAFace Downloadable Documents!
HDSA - HD Trial Finder!
The Unity Project: connecting patients and families with HD/JHD organizations
PLOS - Downloadable Algorithms documents for your doctors!
Educational Partnering HD/JHD Organizations!
Online Support Groups
MyID! Medical Alerts!
Organizations 4 HD/JHD - *Contact us to be added to the mobile App!
HD Bloggers - *Are you a Blogger for HD/JHD? Contact us and we will add your Blog!
WeHaveAFace believes it is imperative that our Huntington's and Juvenile Huntington's patients and families receive as many resources as possible.
If you have an additional resource you wish for us to list, please email us directly through the app!
"WeHaveAFace" App is owned and operated by WeHaveAFace.org
Copyright - 2017 - Registered via Android and iOS markets.
Keeping our HD/JHD loved ones safe!
We are official partners of MyID! We have joined efforts to provide a low-cost Medical ID Alert Bracelet - from ENDEVR creator of these amazing safety alerts! As partners of ENDEVR, the international Huntington's community can receive this discount only through the links below. These bracelets will facilitate a rapid response from EMS, Police, Fire Rescue workers, and the general public, in the case of an emergency! Unlike other bracelets or alerts that come with inscribed information, these MyID! Medical Alerts come with an electronic profile that can be updated on the fly with current information! No need to change anything on the bracelet!
MyID Hive Medical ID Bracelet
Join the Facebook Group!
100% of proceeds from purchases of these MyID! Alerts are held at ENDEVR as a credit, which will allow WeHaveAFace.org to provide these products to HD/JHD community members who are unable to purchase them.
How do they work?
MyID Sleek Medical ID Bracelet
MyID Medical ID Wallet Card
MyID Sport Medical ID Bracelet
MyID Medical ID Sticker Kit
Your donation will help us provide these products to our HD/JHD peers who are unable to purchase them!
Partners of ENDEVR
The Huntington's Poetry Project: Blue and Purple
In January 2017, WeHaveAFace.org has published two poetry books:
"The Huntington's Poetry Project: Blue and Purple" Volume 1 and 2. The poetry book consists of poems from our international Huntington's and Juvenile Huntington's disease.
100% of net proceeds will be allocated to supporting our educational programs and services for Huntington's and Juvenile Huntington's disease.