Image by Samantha Sophia


Our Mission aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease.  Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio shows, mobile applications, electronic publications, accredited training,  social media networking, and WeHaveAFace TV. WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community.  It is also paramount that we educate the general public.

We are proud patients, caregivers, and professionals with years of experience in nonprofit and corporate management, group home management, day-training management, hospice, nursing, hospitals, teaching, training, and technical backgrounds. We have first-hand experience working with individuals with diseases and disabilities.  


The Board of Directors, Advisors, and Advocates of WeHaveAFace are unpaid volunteers as per the National Council of Nonprofits recommendations. The decision to remain as an unpaid, volunteer-only organization is to ensure that our priorities remain focused on allocating 100% of donations received to our educational suite of programs. is a legally registered IRS 501(c)(3) nonprofit organization.  

Image by Nick Fewings
Private Supporters 

Greene's Quality Construction

Bruce Vandegrift

The Eastman Family

Hella Lange

Diane Finocchio

Doug Head

Educational Partners

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Image by Steve Halama Updates!


7035 Branch Court

Saint Cloud, Florida 34771


Phone: (407) 720-9071

England and Wales

167 Salisbury Road

Burton, Christchurch

United Kingdom, BH23 7JS

Phone: +44 7906 644057



51 Sophia Street,

Brockville Ontario

Canada K6V 1V5

Phone: (613) 246-4003


Registered Charity - 72555 6526 RR0001

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