What is Huntington's and Juvenile Huntington's Disease? 

 

Huntington's disease is a hereditary, genetic, and terminal brain disease for which there is no treatment or cure.  Imagine having ALS, Parkinson's, Alzheimer's, Dementia, Bipolar, and Schizophrenia all at the same time.  More information: Huntington's and Juvenile Huntington's disease

 

Our Mission:

 

WeHaveAFace.org USA, Canada, Mexico, England and Wales, and Germany aim to broaden global awareness of Huntington's disease and Juvenile Huntington's disease.  Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio show, mobile applications, electronic publications, accredited training, and social media networking. WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community.  It is also paramount that we educate the general public.

 

WeHaveAFace.org USA, Canada, Mexico, England and Wales, are independently run, legal nonprofit organizations.  However, each entity shares the same values and mission.  WeHaveAFace.org Germany is currently part of our HUBS structure. We are proud patients, caregivers, and professionals with years of experience in nonprofit and corporate management, group home management, day-training management, hospice, nursing, hospitals, teaching, training, and technical backgrounds. We have first-hand experience working with individuals with diseases and disabilities.  

 

WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. The Board of Directors, Advisors, and Advocates of each of the WeHaveAFace organizations are unpaid volunteers. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, resources, and financial needs. It is also our mission to fund Huntington's and Juvenile Huntington's disease research directly.

Hope 

WeHaveAFace.org thanks our friends, partners, and sponsors for their ongoing support!

WeHaveAFace.org Updates!

USA

7035 Branch Court

Saint Cloud, Florida 34771

Phone: (407) 720-9071

Email: USA@WeHaveAFace.org

England and Wales

167 Salisbury Road

Burton, Christchurch

United Kingdom, BH23 7JS

Phone: +44 7906 644057

Email: England@WeHaveAFace.org

Canada

51 Sophia Street,

Brockville Ontario

Canada K6V 1V5

Phone: (613) 246-4003

Email: Canada@WeHaveAFace.org

Registered Charity - 72555 6526 RR0001