Patients should receive a diagnosis of Huntington's disease when they need services and supports. We must change the current diagnostic criteria to include: cognitive, emotional, psychiatric, and vegetative symptoms. A patient should never have to wait for a diagnosis based on chorea alone!
WeHaveAFace.org aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease. Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio shows, mobile applications, electronic publications, accredited training, social media networking, and WeHaveAFace TV. WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community. It is also paramount that we educate the general public.
We are proud patients, caregivers, and professionals with years of experience in nonprofit and corporate management, group home management, day-training management, hospice, nursing, hospitals, teaching, training, and technical backgrounds. We have first-hand experience working with individuals with diseases and disabilities.
The Board of Directors, Advisors, and Advocates of WeHaveAFace are unpaid volunteers as per the National Council of Nonprofits recommendations. The decision to remain as an unpaid, volunteer-only organization is to ensure that our priorities remain focused on allocating 100% of donations received to our educational suite of programs. WeHaveAFace.org is a legally registered IRS 501(c)(3) nonprofit organization.