WeHaveAFace.org USA

WeHaveAFace aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease.  Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio shows, mobile applications, electronic publications, accredited training, social media networking, and in 2020 - WeHaveAFace TV. WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community.  It is also paramount that we educate the general public. WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. The Board of Directors, Advisors, and Advocates of WeHaveAFace are unpaid volunteers, and have a direct tie to Huntington's disease. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, resources, and financial needs.  Review our organization here.

James Valvano - Founder

James Valvano - Founder

Saint Cloud, Florida

Ian Torrington, President

Ian Torrington, President

Saint Cloud, Florida

Daniel Medina, Vice President

Daniel Medina, Vice President

California

Toni Gerig, Treasurer

Toni Gerig, Treasurer

Saint Cloud, Florida

Rosemary Cataldi, Secretary

Rosemary Cataldi, Secretary

Virgina

Candice Neblett, Director of Education

Candice Neblett, Director of Education

Jacksonville, Florida

Madeline Visciano, Director of Community Events

Madeline Visciano, Director of Community Events

Harmony, Florida

Jennifer Lynn Almeida, Director of Communications

Jennifer Lynn Almeida, Director of Communications

Connecticut

Crystal Martin Zachary, Director of Community Development

Crystal Martin Zachary, Director of Community Development

Oklahoma

Crystal Acree Valvano, Director of Marketing/Community Relations

Crystal Acree Valvano, Director of Marketing/Community Relations

Saint Cloud, Florida

Deborah Johnston - Director of Hospice and Palliative Care Resources

Deborah Johnston - Director of Hospice and Palliative Care Resources

Vermont

James Pulliam: Events Operations Director

James Pulliam: Events Operations Director

Virginia

Michael J. Almeida - Regional Advocate

Michael J. Almeida - Regional Advocate

Connecticut

Amelia C. Valvano - Regional Advocate

Amelia C. Valvano - Regional Advocate

Saint Cloud, Florida

Christine Carlson-Kubik - Regional Advocate

Christine Carlson-Kubik - Regional Advocate

Saint Cloud, Florida

Dr. Herwig Lange

Dr. Herwig Lange

George Huntington Institute, Germany - WHAF Senior Medical Advisor

Dr. Kelsey Finn, Mayo Clinic

Dr. Kelsey Finn, Mayo Clinic

Medical Advisor

Carol Kennedy,  (RGN, RDSA, RM, IV.)

Carol Kennedy, (RGN, RDSA, RM, IV.)

WHAF Lead Nurse

WeHaveAFace Newsletter!

USA

7035 Branch Court

Saint Cloud, Florida 34771

Email: Info@WeHaveAFace.org

Phone: (407) 720-9071

England and Wales

167 Salisbury Road

Burton, Christchurch

United Kingdom, BH23 7JS

Phone: +44 7906 644057

Email: England@WeHaveAFace.org

Canada

51 Sophia Street,

Brockville Ontario

Canada K6V 1V5

Phone: (613) 246-4003

Email: Canada@WeHaveAFace.org

Registered Charity - 72555 6526 RR0001

©2009-2021  "WeHaveAFace.org"  WeHaveAFace.org