
WeHaveAFace.org USA
WeHaveAFace aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease. Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio shows, mobile applications, electronic publications, accredited training, social media networking, and in 2020 - WeHaveAFace TV. WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community. It is also paramount that we educate the general public. WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. The Board of Directors, Advisors, and Advocates of WeHaveAFace are unpaid volunteers, and have a direct tie to Huntington's disease. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, resources, and financial needs. Review our organization here.
![]() James Valvano - FounderSaint Cloud, Florida | ![]() Ian Torrington, PresidentSaint Cloud, Florida | ![]() Daniel Medina, Vice PresidentCalifornia |
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![]() Jen Almeida - Secretary and TreasurerConnecticut | ![]() Madeline Visciano, Director of Community Events IHarmony, Florida | ![]() Toni Gerig, Director of Community Events IISaint Cloud, Florida |
![]() Rosemary Cataldi, Director of Community Events IIIVirgina | ![]() Candice Neblett, Director and Liaison - Education and ResearchJacksonville, Florida | ![]() Michael J. Almeida - Director of Information TechnologyConnecticut |
![]() Crystal Martin Zachary, Director of Community DevelopmentOklahoma | ![]() James Pulliam: Events Operations DirectorVirginia | ![]() Amelia C. Valvano - Regional AdvocateSaint Cloud, Florida |
![]() Christine Carlson-Kubik - Regional AdvocateSaint Cloud, Florida | ![]() Dr. Herwig LangeGeorge Huntington Institute, Germany - WHAF Senior Medical Advisor | ![]() Dr. Kelsey Finn, Mayo ClinicMedical Advisor |
![]() Carol Kennedy, (RGN, RDSA, RM, IV.)WHAF Lead Nurse |