WeHaveAFace.org USA

WeHaveAFace aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease.  Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio shows, mobile applications, electronic publications, accredited training, social media networking, and in 2020 - WeHaveAFace TV. WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community.  It is also paramount that we educate the general public. WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. The Board of Directors, Advisors, and Advocates of WeHaveAFace are unpaid volunteers, and have a direct tie to Huntington's disease. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, resources, and financial needs.  Review our organization here.

James Valvano - Founder

James Valvano - Founder

Saint Cloud, Florida

Ian Torrington, President

Ian Torrington, President

Saint Cloud, Florida

Daniel Medina, Vice President

Daniel Medina, Vice President

California

Jen Almeida - Secretary and Treasurer

Jen Almeida - Secretary and Treasurer

Connecticut

Madeline Visciano, Director of Community Events I

Madeline Visciano, Director of Community Events I

Harmony, Florida

Toni Gerig, Director of Community Events II

Toni Gerig, Director of Community Events II

Saint Cloud, Florida

Rosemary Cataldi, Director of Community Events III

Rosemary Cataldi, Director of Community Events III

Virgina

Candice Neblett, Director and Liaison - Education and Research

Candice Neblett, Director and Liaison - Education and Research

Jacksonville, Florida

Michael J. Almeida - Director of Information Technology

Michael J. Almeida - Director of Information Technology

Connecticut

Crystal Martin Zachary, Director of Community Development

Crystal Martin Zachary, Director of Community Development

Oklahoma

James Pulliam: Events Operations Director

James Pulliam: Events Operations Director

Virginia

Amelia C. Valvano - Regional Advocate

Amelia C. Valvano - Regional Advocate

Saint Cloud, Florida

Christine Carlson-Kubik - Regional Advocate

Christine Carlson-Kubik - Regional Advocate

Saint Cloud, Florida

Dr. Herwig Lange

Dr. Herwig Lange

George Huntington Institute, Germany - WHAF Senior Medical Advisor

Dr. Kelsey Finn, Mayo Clinic

Dr. Kelsey Finn, Mayo Clinic

Medical Advisor

Carol Kennedy,  (RGN, RDSA, RM, IV.)

Carol Kennedy, (RGN, RDSA, RM, IV.)

WHAF Lead Nurse

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