Huntington's Disease | Wehaveaface Global HUB

WeHaveAFace Strategic Plan: 2018-2019

Our ongoing mission:

WeHaveAFace aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease. Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilized various state-of-the-art technologies: international videos, films, radio show, mobile application, electronic publications, accredited training, and social media networking. WeHaveAFace we will move our mission forward to close gaps in education and services and provide support to our peers international Huntington's community. It is also paramount that we educate the general public.

We thank our global Huntington's and Juvenile Huntington's community!

Throughout the years, our amazing community has made WeHaveAFace the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. For this, we are sincerely thankful. WeHaveAFace will continue to harness and utilize the latest technologies to reach, support, and connect with, our global Huntington's community. By continuing to utilize these mechanisms, WHAF will facilitate quality supports and services to our global community.

Our global team:

Since 2009, WeHaveAFace continues to endure as an organization operated by patients and caregivers. The Board of Directors, Advisors, and Advocates of WeHaveAFace USA - Canada - UK - Mexico - Germany, are unpaid volunteers. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, resources, and financial needs. It is also our mission to continue to fund Huntington's and Juvenile Huntington's disease research.

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Why are we international?

Since 2015, WeHaveAFace has connected with the international Huntington's community, via electronic needs assessment surveys, and at our international events. The community spoke, and WeHaveAFace listened. WHAF set a goal to create nonprofit organizations in Canada, England and Wales, and Mexico. Although this objective seemed quite challenging, the need to support our community provided us with the desire to succeed. As of February 2018, WHAF has achieved these goals. We must continue to better the lives of our Huntington's and Juvenile Huntington's patients and families.

2018 - 2019 Nonprofit Projections

WeHaveAFace is pleased to announce that we plan to open additional nonprofit organizations in other countries. Again, we understand the difficulties involved; however, our perseverance will facilitate this plan.

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Unity: Huntington's Organizations

Since 2009, WeHaveAFace aimed for inclusion, not exclusion. WeHaveAFace believes that we can better assist the lives of our patients and caregivers if we work collectively. WHAF is grateful for the educational partnerships of the George Huntington Institute, Help 4 HD International, HDCare, AMEH (Asociación Mexicana de la Enfermedad de Huntington), Huntington's Disease Association (HDA), HDYO (Huntington's Disease Youth Organization), and the Huntington Study Group (HSG). WHAF continues to seek educational partnerships with HD/JHD organizations for a common goal, and the common good. The quicker we accept the fact that a single organization cannot do everything alone, the better each of us will be!

Research (Studies/Trials)

Since 2011, WeHaveAFace has been a friend of the Huntington Study Group (HSG) and continues to assist our international patients and families with accurate information regarding studies and trials. On a daily basis, our global team facilitates the education of, and connectivity to, current studies and trials taking place via the HSG. WHAF will continue all efforts to assist patients and families to participate in studies and trials.

Research Fund

Since 2016, WeHaveAFace has directly funded research:

UC Davis Institute for Regenerative Cures (Dr. Jan Nolta, and Dr. Kyle Find)
The University of Iowa - Kids-HD / Kids-JHD (Dr. Peg Nopoulos)

Our fundraising efforts: over $20,000.00 towards these research initiatives. Although we wished to provide more support, we are pleased to have assisted with moving these research programs forward. Our aim for 2018-2019 is to triple the amount of support for research.

Huntington's Disease Assistance Fund

In 2017, WeHaveAFace had been blessed to provide support for our patients and families. Currently, there are very few financial resources for our peers within the Huntington's disease community. In 2017 we were able to provide over $20,000.00 of assistance to our Huntington's and Juvenile Huntington's disease families.

Groceries, clothing, utilities, equipment, rent, Thanksgiving, Christmas, and wishlist support, etc.

Our goal for 2018-2019 is to continue to support our community via larger fundraising events. WHAF has built cooperative relationships with national and international corporate sponsors, and we look forward to raising the bar during our upcoming fundraising events.

WeHaveAFace Programs

WeHaveAFace surveys the international community to gauge their needs. We began 2017 by providing additional programs to better the lives of our international HD/JHD communities.

elVi: Electronic Visit - WeHaveAFace Connect (expanding services in 2018)
WeHaveAFace Magazine
WeHaveAFace Global Times
HD3 Training (Accredited Program)
WeHaveAFace Virtual Support Network - Huntington's Cyber Café
WeHaveAFace - A more robust international mobile application

In 2018, WHAF will announce the opening of chapters in the USA, Canada, UK, and Mexico. Again, the community has spoken, and additional supports and resources are needed.

2018-2019 Financial Support

WeHaveAFace thanks our sponsors for their ongoing support to ensure our programs continue and are successful. WeHaveAFace will continue building relationships with international companies to secure the success of our mission, programs, and future endeavors. If your company is interested in sponsoring/funding the broadest global multimedia driven nonprofit organization for Huntington's disease, then WeHaveAFace invites you to contact us.

Transparency

WeHaveAFace continues to produce transparent, and detailed annual reports. It is necessary that an organization provides clear and concise reporting. WHAF understands that financial transparency preserves trust in our relationships with donors. WeHaveAFace is pleased to have earned Platinum Status with GuideStar and will continue to be held accountable via transparency. WeHaveAFace invites you to review our 2017 Annual Report and our Programs Year in Review.

Educational Documentaries

Since the release of our first documentary, "The Huntington's Disease Project: Removing the Mask," many have asked us, "What is next?" We are pleased to announce that production of "The Purple Road" has been completed. With the generous support of TEVA Pharmaceuticals (TEVA Global), WHAF traveled to different parts of the globe to give our Juvenile Huntington's disease peers and families a chance to share their experiences - Germany, Canada, England, and the USA. We are proud to have the participation and support of our friends and educational partner, Help 4 HD International.

With the global success of our first documentary, we are pleased to bring another film to the worldwide stage. We are confident that through truth, love, sensitivity, and professionalism, "The Purple Road" will bring Juvenile Huntington's disease to the forefront - globally. WeHaveAFace and Help 4 HD International understands how to produce such films, and through years of experience as a social networking and media-driven organizations, we look forward to broadening educational awareness of this disease.

Film Festival News!

WeHaveAFace continues to live by the quote written by Margaret Mead: "Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has."