James Valvano

Founder of WeHaveAFace.org

Advocacy 2009 to present

Diagnosed with Huntington's disease in 2009

"I'm the seventh of eight children...five of us had HD and there are so many children at risk in my family.  My father and brother are HD Angels and all of us at WeHaveAFace are directly affected by this monster."

Advocacy Mission:

June 4, 2016: Recipient of the HDSA Marjorie Guthry Award.


Three Peaks Challenge for Huntington's Disease


Award-Winning Documentaries -

Huntington's and Juvenile Huntington's Disease


7035 Branch Court

Saint Cloud, Florida 34771

Email: Info@WeHaveAFace.org

Phone: (407) 720-9071

England and Wales

167 Salisbury Road

Burton, Christchurch

United Kingdom, BH23 7JS

Phone: +44 7906 644057

Email: England@WeHaveAFace.org


51 Sophia Street,

Brockville Ontario

Canada K6V 1V5

Phone: (613) 246-4003

Email: Canada@WeHaveAFace.org

Registered Charity - 72555 6526 RR0001

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