James Valvano

Founder of WeHaveAFace.org

Advocacy 2009 to present

Diagnosed with Huntington's disease in 2009

"I'm the seventh of eight children...five of us had HD and there are so many children at risk in my family.  My father and brother are HD Angels and all of us at WeHaveAFace are directly affected by this monster."

Advocacy Mission:

June 4, 2016: Recipient of the HDSA Marjorie Guthry Award.

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Three Peaks Challenge for Huntington's Disease

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Award-Winning Documentaries -

Huntington's and Juvenile Huntington's Disease

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