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Press Release

WeHaveAFace USA and WeHaveAFace England and Wales Retires Charities

Florida, January 16, 2023 – After almost fourteen years of providing services, supports, and recourses for the International Huntington’s community, USA and England and Wales, will be closing on March 1, 2023. was created by Huntington’s disease patients and families in 2009. At that time in history, a small group of individuals decided to make a difference in the lives of their peers to find a viable treatment or a cure for Huntington’s disease. After two years of advocacy, the team grew into a diverse international family and maintained the same mission – to broaden international awareness of Huntington’s and Juvenile Huntington’s disease. Adhering to the mission, which was set in stone.


IRS Letter of Determination

April 15, 2015


Required Filing

License Type: Charitable Organization

License#: CH4431606

Issued: 06/14/15

Expires: 06/04/23

Status: Registered Filings

2015 - 990-N (e-Postcard)

Less than $50k income

2016 - 990EZ

2017 - 990EZ

2018 - 990EZ

2019 - 990EZ

2020 - 990-N (e-Postcard) 

Less than $50k income

2020 Financial Report

SBA Documentation

2020 Year in Review



GuideStar Participant!

Platinum Seal of Transparency 

2017 - 2021


Required Florida Annual Reports

Dissolution of Charity Filed:

February 2, 2023


European Huntington's Disease Network

 EHDN Members


Florida State

State of Florida:

Florida Not For Profit Corporation


Filing Information:

Document Number: N15000005089

FEI/EIN Number: 47-4075248

Dissolution Date: March 1, 2023


IRS Registered Inc.

EIN: 47-4075248

St Cloud, FL, United States

Publication 78 Data Organizations eligible to receive tax-deductible charitable contributions.

Users may rely on this list in determining deductibility of their contributions.

On Publication 78 Data List: Yes

Deductibility Code: PC

Search IRS:

IRS Letter of Determination

Dissolution Date: March 1, 2023

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