WeHaveAFace.org aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease.  Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio shows, mobile applications, electronic publications, accredited training,  social media networking, and now WeHaveAFace TV.  WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community.  It is also paramount that we educate the general public.

WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. The Board of Directors, Advisors, and Advocates of WeHaveAFace.org are unpaid volunteers. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, and resources, through our program suite.  WeHaveAFace.org is a registered 501(c)(3) national nonprofit organization.

As per the National Council of Nonprofits: "Most people recognize that the vast majority of board members of charitable nonprofits are unpaid volunteers. Historically, the structure of charitable nonprofits in America has placed sizable responsibilities on board members. Board members often have full-time jobs, families, busy professional lives but are also tasked with legal obligations as fiduciaries to ensure that the nonprofit’s assets serve the nonprofit's mission and benefit the public - not private interests. Board members provide policy oversight and often visionary leadership for entire communities while cheerleading for the nonprofit’s mission with donors, potential donors, other volunteers, policymakers, and clients/consumers of the nonprofit’s services. And the expectation is that that they do all this as volunteers."

Florida State

State of Florida:

Florida Not For Profit Corporation


Filing Information:

Document Number: N15000005089

FEI/EIN Number: 47-4075248

IRS Registered

WeHaveAFace.org Inc.

EIN: 47-4075248

St Cloud, FL, United States

Publication 78 Data Organizations eligible to receive tax-deductible charitable contributions.

Users may rely on this list in determining deductibility of their contributions.

On Publication 78 Data List: Yes

Deductibility Code: PC

Search IRS: https://apps.irs.gov/app/eos/

IRS Letter of Determination

Consumer's Certificate of Exemption


IRS Letter of Determination

April 20, 2015



Form 990-N (e-Postcard)



Form 990EZ



Form 990EZ



Form 990EZ



Form 990EZ


Required Florida Annual Reports

Florida Department of Agriculture and Consumer Services


License Type: Charitable Organization

License#: CH4431606

Issued: 06/14/15

Expires: 06/04/20

Status: Registered

GuideStar Participant!

Platinum Seal of Transparency



European Huntington's Disease Network

WeHaveAFace are proud

to be  part of EHDN

Huntington's Disease Assistance Fund

WeHaveAFace was blessed to have been able to help our HD/JHD patients and families since 2016.

2016 - 2020

HD3 Training

WeHaveAFace England and Wales

*As of January 2020, WeHaveAFace has successfully provided this accredited training program to hundreds of medical professionals. We look forward to broadening the HD-3 Training Program into the future.*


Team USA

We are so proud of our Team USA! Please  take a moment to view our incredible team!

Questions/Comments: Info@WeHaveAFace.org


7035 Branch Court

Saint Cloud, Florida 34771

Email: Info@WeHaveAFace.org

Phone: (407) 720-9071

England and Wales

167 Salisbury Road

Burton, Christchurch

United Kingdom, BH23 7JS

Phone: +44 7906 644057

Email: England@WeHaveAFace.org


51 Sophia Street,

Brockville Ontario

Canada K6V 1V5

Phone: (613) 246-4003

Email: Canada@WeHaveAFace.org

Registered Charity - 72555 6526 RR0001

©2009-2020  "WeHaveAFace.org"  WeHaveAFace.org