WeHaveAFace.org aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease.  Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilize various state-of-the-art technologies: international videos, films, radio shows, mobile applications, electronic publications, accredited training,  social media networking, and now WeHaveAFace TV.  WeHaveAFace will move our mission forward to close gaps in education and services and provide support to our international Huntington's community.  It is also paramount that we educate the general public.

WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. The Board of Directors, Advisors, and Advocates of WeHaveAFace.org are unpaid volunteers. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, and resources, through our program suite.  WeHaveAFace.org is a registered 501(c)(3) national nonprofit organization.

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As per the National Council of Nonprofits: "Most people recognize that the vast majority of board members of charitable nonprofits are unpaid volunteers. Historically, the structure of charitable nonprofits in America has placed sizable responsibilities on board members. Board members often have full-time jobs, families, busy professional lives but are also tasked with legal obligations as fiduciaries to ensure that the nonprofit’s assets serve the nonprofit's mission and benefit the public - not private interests. Board members provide policy oversight and often visionary leadership for entire communities while cheerleading for the nonprofit’s mission with donors, potential donors, other volunteers, policymakers, and clients/consumers of the nonprofit’s services. And the expectation is that that they do all this as volunteers."

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Required Filing

License Type: Charitable Organization

License#: CH4431606

Issued: 06/14/15

Expires: 06/04/22

Status: Registered

WeHaveAFace.org Filings

2015 - 990-N (e-Postcard)

Less than $50k income

2016 - 990EZ

2017 - 990EZ

2018 - 990EZ

2019 - 990EZ

2020 - 990-N (e-Postcard) 

Less than $50k income

2020 Financial Report

SBA Documentation

2020 Year in Review




GuideStar Participant!

Platinum Seal of Transparency 

2017 - 2021



Required Florida Annual Reports


European Huntington's Disease Network


 EHDN Members


Florida State

State of Florida:

Florida Not For Profit Corporation


Filing Information:

Document Number: N15000005089

FEI/EIN Number: 47-4075248


IRS Registered

WeHaveAFace.org Inc.

EIN: 47-4075248

St Cloud, FL, United States

Publication 78 Data Organizations eligible to receive tax-deductible charitable contributions.

Users may rely on this list in determining deductibility of their contributions.

On Publication 78 Data List: Yes

Deductibility Code: PC

Search IRS: https://apps.irs.gov/app/eos/

IRS Letter of Determination

Consumer's Certificate of Exemption



IRS Letter of Determination

April 15, 2015

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Huntington's Disease Assistance Fund

WeHaveAFace was blessed to help our HD/JHD patients and families since 2016.

View our 2016 - 2020 HD Assistance Fund

HD3 Training

WeHaveAFace England and Wales

*As of January 2020, WeHaveAFace has successfully provided this accredited training program to hundreds of medical professionals. We look forward to broadening the HD-3 Training Program into the future.*

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WeHaveAFace 10 Year Review Magazine

White Accessories

WeHaveAFace Educational Program Suite

Image by Nick Fewings
Private Supporters 

Greene's Quality Construction

Bruce Vandegrift

The Eastman Family

Almeida Family

Hella Lange

Diane Finocchio

Doug Head

Valvano/Torrington Family

Educational Partners

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Maastricht University Medical Center, NL
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Leiden University Medical Centre, NL.jpe
Image by Steve Halama

Questions/Comments: Info@WeHaveAFace.org

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