Hospice and Palliative Care Resources

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WeHaveAFace launched this new program that will facilitate hospice and palliative care supports and resources for our Huntington's patients and families. 

Director of Hospice and Palliative Care Resources, Deborah Johnston, has been caring for individuals with disabilities for over ten years.  Deborah lost her mother to Huntington's Disease in 2011 at the age of seventy-two. Deborah was her caregiver and advocate for over ten years. Deborah currently works for Bayada Hospice as an LNA/CHPNA and also cares for people with other types of neurodegenerative diseases. Deborah is a support group leader/facilitator for HD and started the Facebook group Huntington's Disease Support Group For Everyone.  Deborah has been an advocate for Huntington's Disease since her mother was officially diagnosed in 2009.  

Deborah is available to help our Huntington's community with questions or concerns regarding hospice and palliative care resources and placement.  She will also work with our educational partners to better assist families.​ This service is free to all HD/JHD patients, caregivers, and families.  

Early Childhood Education at Becker College

Special Needs Children

LNA: Licensed Nursing Assistant

CHPNA: Certified Hospice Palliative Nursing Assistant  

Contact Deborah by completing the form below.

Contact Deborah

Thank you! Deborah will be in contact with you within 24-48 hours.

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