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3rd Annual Convention Program

WeHaveAFace invites you to join us on Saturday, May 19, 2018, for an educational multimedia extravaganza for Huntington's and Juvenile Huntington's disease!  We are pleased to celebrate our 3rd annual convention in sunny, Orlando Florida!

The Crowne Plaza Orlando Universal
7800 Universal Blvd, Orlando, Florida 32819
7:00AM - 10:00PM

Registration and Breakfast

7:00 AM - 8:40 AM

Crowne Room 

James Valvano - Founder/President of WeHaveAFace

8:40 AM - 9:00 AM - President: James Valvano  

  • Opening Video and Address

Day Program Begins - Crowne Room

Dr. Jan Nolta

​9:00 AM - 9:20 AM - Dr. Jan Nolta (UC Davis: Juvenile Huntington's Disease)


  • JHD Research Update

UC Davis JHD Research Update - Crowne Room

Dr. Peg Nopoulos

9:20 AM - 9:40 AM - Dr. Peg Nopoulos ( University of Iowa: Kids-HD / Kids JHD)


  • The Role of the Cerebellum in HD

University of Iowa - Kids/HD - Kids/JHD - Crowne Room

Dr. Ed Wild

9:40 AM -10:00 AM - Dr. Ed Wild (University College London / HDBuzz)


  • On stage Q&A

  • Send your questions to Dr. Ed Wild to:

University College London / HDBuzz - Crowne Room

Dr. Herwig Lange

10:00 AM - 10:20 AM - Dr. Herwig Lange (George Huntington Institute)


  • When and how does HD begin? Discussion from molecular to the clinical level of HD.

George Huntington Institute - Crowne Room


Break: 10:20 AM - 11:00 AM

Jimmy Pollard

11:00 AM - 12:00 PM

“Huntington’s Disguise” - Presentation


As HD progresses, it often places a mask on the person you love. They’re the same person, but it’s difficult to see them beyond the disguise. Understanding some of the more subtle physical and cognitive aspects of HD can help you see through this “Huntington’s Disguise.” Your loved one may not be bored, disinterested, angry or unwilling, although they may appear that way to some. Underneath they are the very same person you have known, loved and cared for through the years.

CHDI Foundation - Crowne Room


12:00 PM - 1:20 PM

Crowne Room

Team UK

1:20 PM - 1:40 PM

Carol Kennedy and Daniel Heath - Crowne Room

Team Mexico

1:40 PM - 2:00 PM

Brenda Vega and Daniel Medina - Crowne Room

Team Canada

2:00 PM - 2:20 PM

Cindy Moore and Rachel Wade - Crowne Room


2:20 PM - 3:00 PM

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3:00 PM - 5:00 PM

The premiere of "The Purple Road."

Day Program Ends

5:00 PM 

GALA Dinner Begins

GALA Dinner

7:00 PM - 10:00 PM

Crowne Room

Crystal Acree Valvano and Candice Neblett

Dir.of Marketing and Community Relations  and Dir. of Education 

7:20 PM - 7:40 PM



  • History of WeHaveAFace

  • Overview of 2017

  • Goals for 2018 and beyond

Crowne Room

GALA Dinner and Awards

7:40 PM - 10:00 PM


Awards Ceremony with Videos


  • Program of the Year Award

  • Presentation of the Year Award

  • Excellence in Research Awards

  • Huntington's Disease Service Award

  • The Advocate of the Year Award

  • Lifetime Achievement Award 

  • Photos

Crowne Room

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