WeHaveAFace
3rd Annual Convention Program
WeHaveAFace invites you to join us on Saturday, May 19, 2018, for an educational multimedia extravaganza for Huntington's and Juvenile Huntington's disease! We are pleased to celebrate our 3rd annual convention in sunny, Orlando Florida!
The Crowne Plaza Orlando Universal
7800 Universal Blvd, Orlando, Florida 32819
7:00AM - 10:00PM
Registration and Breakfast
7:00 AM - 8:40 AM
Crowne Room
James Valvano - Founder/President of WeHaveAFace
8:40 AM - 9:00 AM - WeHaveAFace.org President: James Valvano
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Opening Video and Address
Day Program Begins - Crowne Room
Dr. Jan Nolta
9:00 AM - 9:20 AM - Dr. Jan Nolta (UC Davis: Juvenile Huntington's Disease)
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JHD Research Update
UC Davis JHD Research Update - Crowne Room
Dr. Peg Nopoulos
9:20 AM - 9:40 AM - Dr. Peg Nopoulos ( University of Iowa: Kids-HD / Kids JHD)
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The Role of the Cerebellum in HD
University of Iowa - Kids/HD - Kids/JHD - Crowne Room
Dr. Ed Wild
9:40 AM -10:00 AM - Dr. Ed Wild (University College London / HDBuzz)
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On stage Q&A
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Send your questions to Dr. Ed Wild to: Info@WeHaveAFace.org
University College London / HDBuzz - Crowne Room
Dr. Herwig Lange
10:00 AM - 10:20 AM - Dr. Herwig Lange (George Huntington Institute)
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When and how does HD begin? Discussion from molecular to the clinical level of HD.
George Huntington Institute - Crowne Room
Break
Break: 10:20 AM - 11:00 AM
Jimmy Pollard
11:00 AM - 12:00 PM
“Huntington’s Disguise” - Presentation
As HD progresses, it often places a mask on the person you love. They’re the same person, but it’s difficult to see them beyond the disguise. Understanding some of the more subtle physical and cognitive aspects of HD can help you see through this “Huntington’s Disguise.” Your loved one may not be bored, disinterested, angry or unwilling, although they may appear that way to some. Underneath they are the very same person you have known, loved and cared for through the years.
CHDI Foundation - Crowne Room
Lunch
12:00 PM - 1:20 PM
Crowne Room
Team UK
1:20 PM - 1:40 PM
Carol Kennedy and Daniel Heath - Crowne Room
Team Mexico
1:40 PM - 2:00 PM
Brenda Vega and Daniel Medina - Crowne Room
Team Canada
2:00 PM - 2:20 PM
Cindy Moore and Rachel Wade - Crowne Room
Break
2:20 PM - 3:00 PM
3:00 PM - 5:00 PM
The premiere of "The Purple Road."
Day Program Ends
5:00 PM
GALA Dinner Begins
GALA Dinner
7:00 PM - 10:00 PM
Crowne Room
Crystal Acree Valvano and Candice Neblett
Dir.of Marketing and Community Relations and Dir. of Education
7:20 PM - 7:40 PM
Presentation:
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History of WeHaveAFace
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Overview of 2017
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Goals for 2018 and beyond
Crowne Room
GALA Dinner and Awards
7:40 PM - 10:00 PM
Awards Ceremony with Videos
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Program of the Year Award
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Presentation of the Year Award
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Excellence in Research Awards
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Huntington's Disease Service Award
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The Advocate of the Year Award
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Lifetime Achievement Award
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Photos
Crowne Room