Regional Advocate Program

Regional Advocates

When you join, you will be joining an international team of incredible people. was founded in 2009, and since then, we have grown into a loving family.  Our aim is to broaden awareness of Huntington's and Juvenile Huntington's disease - globally.  With your help, we can reach the world! is the premier multimedia organization for HD and JHD. All Regional Advocates will have the opportunity to work on various programs and events to better the lives of our community and receive all the necessary supports via headquarters.  Together we can move mountains!

​Core Principle

As Regional Advocates, we are responsible for adding value to the Huntington’s and Juvenile Huntington’s disease community in which we serve. We must always be professional and accountable for our decisions and actions within our advocacy mission: social media, messaging, and in-person or video communications.


Adhere to the highest standards of ethical and professional behavior.

Comply with the law(s) within all countries where you will advocate.

Treat people with dignity, respect, and compassion to foster a trusting work environment free of harassment, intimidation, and unlawful discrimination. Be ethical; act ethically in every interaction.

Respect the uniqueness and fundamental worth of every individual.

Communicate all concerns regarding via the appropriate fashion: Notify the Board of Directors via email:

Regional Advocates must adhere to the privacy policy and ethics policy of

*Regional Advocates will receive a WeHaveAFace Facebook banner to use on their personal page.

*Regional Advocates will have a Facebook group created for their state to support patients and caregivers in that region.

*Regional Advocates and all who work at are unpaid volunteers.

*Regional Advocates are reviewed after a sixty (60) day period and will be notified via email that they may or may not continue to be a part of the Regional Advocate Program. Regional Advocates can decide to remove themselves from this volunteer position at any time.

I attest that I have no criminal background and I give permission to do a random background check if necessary.

Your Signature


7035 Branch Court

Saint Cloud, Florida 34771


Phone: (407) 720-9071

England and Wales

167 Salisbury Road

Burton, Christchurch

United Kingdom, BH23 7JS

Phone: +44 7906 644057



51 Sophia Street,

Brockville Ontario

Canada K6V 1V5

Phone: (613) 246-4003


Registered Charity - 72555 6526 RR0001

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