Our Mission

December 31, 2016

WeHaveAFace aims to broaden global awareness of Huntington's disease and Juvenile Huntington's disease.  Our success in increasing awareness and education of this disease will continue to be measured by our ability to embrace and utilized various state-of-the-art technologies: international videos, films, radio show, mobile application, electronic publications, accredited training, and social media networking. WeHaveAFace we will move our mission forward to close gaps in education and services and provide support to our peers international Huntington's community.  It is also paramount that we educate the general public. WeHaveAFace is the premier international multimedia advocacy organization for Huntington's disease and Juvenile Huntington's disease. The Board of Directors, Advisors, and Advocates of WeHaveAFace are unpaid volunteers. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, resources, and financial needs. It is also our mission to directly fund Huntington's and Juvenile Huntington's disease research.

The Organization - 2016 Annual Report

WeHaveAFace.org Inc.  

2016 Annual Report

2016 Florida Certificate

IRS Tax-Exempt Status

 

The Board of Directors, Advisors, and Regional Advocates of WeHaveAFace.org are unpaid volunteers. The decision to remain as an unpaid, volunteer-only organization was to ensure that our priorities remain focused on allocating 100% of donations to our Huntington's and Juvenile Huntington's community via education, resources, and financial needs. It is also within our mission to provide financial assistance for Huntington's and Juvenile Huntington's disease research.

The Huntington's Disease Assistance Fund!

December 31, 2016

WeHaveAFace.org:  "The Huntington's Disease Assistance Fund" 

In 2017, WeHaveAFace.org was able to provide $15,176.41 of assistance to our Huntington's and Juvenile Huntington's disease community.

- Patients/families with necessary supplies  Facebook page.

- JHD peers with donations toward their bucket lists! 

- Thanksgiving and Christmas 

- HDSA - National Youth Alliance (NYA)

- Supporting nonprofit organizations -  HD/JHD Events

In 2017, we will continue to hold community fundraising events to provide ongoing funding for this program.  Please visit the link below for more information about our Assistance Program.

 

"The Huntington's Disease Assistance Fund"

 

Juvenile Huntington's Disease Research

December 31, 2016

WeHaveAFace.org Inc. is dedicated to funding research for Juvenile Huntington's disease. It is paramount that our amazing researchers receive every penny that is raised towards research. WeHaveAFace.org Inc. needs your help to assist our researchers in finding viable treatments or the cure for Juvenile Huntington's disease! 

 

In 2016, WeHaveAFace was able to provide $12,645.00 towards the following research:

- Dr. Jan Nolta/Dr. Kyle Find (UC Davis) 

- Dr. Peg Nopoulos (University of Iowa) Kids-HD / Kids-JHD

Your direct donation will be allocated for Dr. Kyle Fink's JHD stem cell research program at UC Davis.

December 31, 2016

WeHaveAFace.org Inc. has launched a very different platform in 2016 - "WeHaveAVoice" Radio for the Huntington's community!  It was time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount!  Please visit: http://www.spreaker.com/show/wehaveavoice

WeHaveAFace.org Inc.: Associated Member of the European Huntington’s Disease Network (EHDN)

December 31, 2016

WeHaveAFace.org Inc. is pleased to have continued our Associated Member of the European Huntington’s Disease Network (EHDN) through 2016. 

International - Regional Advocates and Associate Organizations

December 31, 2016

Anyone can become a Regional Advocate! How does it work? 

All Regional Advocates help build community relationships and share posts, photos, programs, and resources of WeHaveAFace.org. WeHaveAFace.org has always been a community driven organization, and we are always looking for additional advocates to join the team! All individuals of WeHaveAFace.org are unpaid volunteers. The support from our amazing Regional Advocates has been wonderful!  

 

Associate Organizations?

WeHaveAFace.org Inc. wishes to work with all JHD/HD organizations to help spread awareness and resources - globally.  Inclusively, we will work together to unite our communities and educate the general public.  Together we will make a difference!

 

The future of WeHaveAFace!

All Regional Advocates and Associate Organizations will be given the opportunity to participate within various publications: magazines, books, films, PSA's, support groups, and so much more! We must join together and educate the world about Huntington's disease and Juvenile Huntington's disease.

 

International Huntington's Disease Documentary

December 31, 2016

In 2016, WeHaveAFace.org was able to travel to many locations in the USA, Canada, and England to premiere the first of its kind, comprehensive, international documentary for Huntington's disease.  The documentary:  "The Huntington's Disease Project: Removing the Mask" was entered into various film festivals, and received many "Selections" and three "Best Feature Documentary" awards. 

 

We set out on our mission in 2011 to produce a film that would bring global awareness of this horrific disease.  Our aim was to remove "the masks" that exist with Huntington's disease, and tackle subject matter, which has never been attempted before.  In 2016, our goal is to release this film to our HD/JHD peers, medical professionals, HD organizations, pharmaceutical companies, and the general public.

MyID! Medical Alerts!

December 31, 2016

MyID! Medical Alerts!

 

History: In November 2015, WeHaveAFace.org and HDCare.org introduced a technological advance in safety and education for Huntington's disease. Partnering with ENDEVR, we were pleased to begin offering MyID! Medical Alerts: Bracelets, ID Cards, and ID Stickers to our population. To see how these products work, visit: www.WeHaveAFace.org/id

In 2016, we were able to supply many of our HD/JHD community members with this incredible technological product to provide rapid response via EMS, Fire, and Police.  During all of our 2016 events, we provided education and support for this product.  We look forward to continuing this program in 2017.

The International Mobile App!

December 31, 2016

WeHaveAFace.org Inc. launched a new international mobile application for Huntington's disease in December 2015. It was our aim to develop a user-friendly approach to provide education, resources, and information to our HD/JHD community and the general public.  The mobile application will continue to grow and expand throughout 2016.  The goal of this mobile application is to deliver an “on the go” tool-kit of resources to the user.  Inasmuch, the mobile application exists as an inclusive advocacy instrument – offering the user a broad scope of resources.  An “open-call” was announced across all social media platforms to include HD/JHD nonprofit organizations, research organizations, bloggers, and pharmaceutical companies.  We were pleased at the response, and will continue our “open-door” policy to better the lives of our Huntington’s peers.

 

What's in the App?

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WeHaveAFace.org thanks our friends, supporters, and sponsors for their ongoing support!

Cindy Moore

WeHaveAFace.org Updates!

USA

7035 Branch Court

Saint Cloud, Florida 34771

Phone: (407) 720-9071

Email: USA@WeHaveAFace.org

England and Wales

167 Salisbury Road

Burton, Christchurch

United Kingdom, BH23 7JS

Phone: +44 7906 644057

Email: England@WeHaveAFace.org

Canada

51 Sophia Street,

Brockville Ontario

Canada K6V 1V5

Phone: (613) 246-4003

Email: Canada@WeHaveAFace.org

Registered Charity - 72555 6526 RR0001