WeHaveAFace.org wishes to help Clare Gibbons of NYGH with the survey: "Telling the children: Disclosure challenges and support needs of parents with children at risk for Huntington Disease"
Clare Gibbons obtained a Master of Science degree in Genetic Counseling from Sarah Lawrence College in 1996. She is currently an American and Canadian Board certified genetic counselor and works at North York General Hospital in Toronto, Canada. She has been a member of the multidisciplinary HD clinic at North York General Hospital for 12 years. She provides genetic counseling to people undergoing genetic testing for HD and also provides support and resource information to people being followed in the HD clinic. Recently, Ms. Gibbons has become more actively involved in a number of HD related research projects. In particular, she is working with a Masters student who is doing her thesis project on the challenges parents face when talking to their children about HD.