Mission: WeHaveAFace.org is the first organization founded to increase international awareness of Huntington's disease through a cinematic form.
Since its inception, this is the first alliance of grassroots organizations in the Huntington’s disease community to come together for a single project.
Founded in March 2011, we have taken a multifaceted approach toward advocacy. Our aim is to produce the first international documentary which
will incorporate the stories and experiences of our peers in many countries across the globe, as well as including interviews with international HD
organizations, HD researchers, and HD medical professionals. A production of this magnitude has never been tried before, and will serve as an
educational tool for the entire Huntington's disease community. In addition to the documentary, WeHaveAFace.org joined forces with Melissa
Biliardi's "Help 4 HD - The HD View" BlogTalkRadio show. With over 60,000+ listeners, this vital addition to the project injected a "voice" for
Huntington's disease out to our community, and brought us a venue to discuss sensitive topics which were never discussed before. The
Huntington's Disease Project continued to morph as we offered the international community additional components: Education - Resources -
Information. We furthered our support by offering a free mobile application to the international community. We listened, and heard our fellow peers
speak.
The community has always been the main focus of our drive and determination. Since the creation of WeHaveAFace.org in March 2011, it was
through the support, stories, and experiences of the JHD/HD community that our mission became a reality. In less than a year, we were blessed as
the international community began to understand our cause, and the urgency to reach out and make a difference. It was affirmed that our mission
aligned with so many within our community. As individuals who are directly affected by Juvenile Huntington's disease and Huntington's disease, we
were able to create a movement never seen before. It was time to "step outside the box" and advocate for Huntington's disease through all means
necessary. We are the community, and time is of the essence. A change was necessary, and the stagnancy which has existed within the
Huntington's disease community for decades, had to be examined. With the support from our peers and from HD organizations throughout the
world, the project mission was further validated. Among our goals is to help support other groups, and nonprofit Huntington's disease organizations
to spread awareness globally. Inasmuch, with the mutual goals and transparency of WeHaveAFace.org, Help4HD-International.org, and the
organizations we support, together, we will bring about the necessary awareness of Huntington's disease.
WeHaveAFace.org is an independent, educational project comprised of a team of individuals within the JHD/HD community. Via the documentary,
WeHaveAFace.org will facilitate the first venue by which international community members will be able to tell their stories: uncut - uncensored -
untainted. Light must be shed on all aspects of Huntington's disease and brought to the forefront. It is time to face the challenges within our own
community and unite. It is imperative that we celebrate the lives of everyone touched by this horrific disease!
"The Huntington's Disease Project" focuses on bringing worldwide awareness of Huntington's disease. The film is the first of its kind, created
solely by individuals within the JHD/HD community, and a legacy for future generations. Find out why "The Huntington's Disease Project" is the
missing piece!
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