WeHaveAFace.org is the first organization founded to increase international awareness
of Huntington's disease through a cinematic form. Founded in March 2011, we merged
with Deshalamar.org of New York. Clarice Miller and Deon Leftenant (founders of
Deshalamar.org) have been the driving effort and support behind the success of our
project. Together, we have taken a multifaceted approach toward advocacy. In addition
to the documentary, WeHaveAFace.org joined forces with Melissa Biliardi's "Help 4 HD -
The HD View" BlogTalkRadio show. This vital addition to the project injected a "voice"
for Huntington's disease out to our community, and brought us a venue to discuss
sensitive topics which were never discussed before. The Huntington's Disease Project
continued to morph as we offered the international community additional components:
Education - Resources - Information. We furthered our support by offering a free
mobile application to the international community, and our "On the road...Help 4 HD"
materials. We listened, and heard our fellow peers speak.
The community has always been the main focus of our drive and determination. Since
the creation of WeHaveAFace.org in March 2011, it was through the support, stories, and
experiences of the JHD/HD community that our mission became a reality. In less than a
year, we were blessed as the international community began to understand our cause,
and the urgency to reach out and make a difference. It was affirmed that our mission
aligned with so many within our community. As individuals who are directly affected by
Juvenile Huntington's disease and Huntington's disease, we were able to create a
movement never seen before. It was time to "step outside the box" and advocate for
Huntington's disease through all means necessary. We are the community, and time is
of the essence. A change was necessary, and the stagnancy which has existed within
the Huntington's disease community for decades, had to be examined.
Read our mission>
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